Dr. Mickey Coffler and the Importance of PCOS Advocacy

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September is PCOS Awareness Month, a wonderful opportunity to educate the public about polycystic ovary syndrome (PCOS), the most common hormonal disorder impacting women.

According to the PCOS Awareness Association, PCOS affects seven million women in the U.S., more than the number of people diagnosed with breast cancer, rheumatoid arthritis, multiple sclerosis and lupis combined. Though millions of women have this syndrome, public awareness about it is not high and support organizations receive very little funding. As a result, close to 50 percent of women are not diagnosed properly or may not learn they have PCOS until they try to get get pregnant.

This year, one of the leading PCOS advocacy organizations, PCOS Challenge, is taking awareness a step further. PCOS Challenge wants Congress to pass legislation (H. Res. 495) to officially designate September as PCOS Awareness Month. This law recognizes the seriousness of PCOS and the need for further research and treatment options and, potentially, a cure. This is a historic, bipartisan effort.

Contact your Member of Congress
PCOS Challenge is encouraging PCOS patients and medical professionals to contact their Congressional representatives to let them know the importance of the bill’s passage. If your Congressional representative is not already a sponsor, you can identify him or her at this link: http://bit.ly/2ePFWy0. Sponsors are listed here: http://www.pcoschallenge.org/prioritize-pcos.

PCOS advocacy organizations
In addition to advocating for positive legislation, PCOS organizations play important roles in moving the conversation forward about how to help women with PCOS control their symptoms, prevent future disease complications like heart disease and diabetes, and combat fertility if pregnancy is their goal. Two of the leading ones are PCOS Challenge and the PCOS Awareness Association.

PCOS Challenge (http://www.pcoschallenge.org), the group behind the passage of H. Res. 495, is one of the leading nonprofit support organizations advancing PCOS awareness and serves nearly 45,000 members. Its focus is education and raising public consciousness; it also provides “confidence” grants to women for laser hair removal and other treatments to deal with body hair growth.

The PCOS Awareness Association (http://www.pcosaa.org) is another not-for-profit providing resources and information to women with PCOS.


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